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Repositioning biological citizenship: State, population, and individual risk in the Framingham Heart Study

  • Erik Aarden

Veröffentlichungen: Beitrag in FachzeitschriftArtikelPeer Reviewed

Abstract

The social implications of recent developments In the life sciences have widely been theorized In terms of 'biological citizenship'; a notion that suggests that claims on collective resources are Increasingly brought forward by groups of Individuals organized around shared molecular biological characteristics, outside of traditional Institutional formations centered on the state. In this paper, I propose to amend this notion by situating biological citizenship In Its specific context of emergence. I suggest that the notion of molecular biological citizenship from below, with Its focus on Individual responsibility for disease risks, was In part facilitated by the development of Ideas of Individual responsibility for phenotypic 'risk factors' In the government-funded Framingham Heart Study In the United States. I reconstruct how the federal government retreated from direct operational responsibility for the Study, defined and maintained the boundaries of the population and contributed particular risk-based notions of life over more than six decades of cardiovascular disease research. I suggest that government, population, and life as defined In the Study are Indispensable for contemporary notions of biological citizenship and that analysts need to attend to these situated origins In order to productively understand biological citizenship In relation to wider transformations of citizenship at present.

OriginalspracheEnglisch
Seiten (von - bis)494–512
Seitenumfang19
FachzeitschriftBioSocieties
Jahrgang13
Ausgabenummer2
Frühes Online-Datum22 Nov. 2017
DOIs
PublikationsstatusVeröffentlicht - Juni 2018

Fördermittel

I would like to thank all interview respondents for their time and insight, as well as the Spring 2014 Harvard/MIT \u2018\u2018STS and the life sciences\u2019\u2019 reading group, Alessandro Blasimme, Max Fochler, and Ingrid Metzler for their helpful observations about earlier drafts of the paper. Three anonymous journal reviewers have added insightful comments that greatly helped in clarifying the argument. Remaining shortcomings are entirely my responsibility. Research for this paper was supported by a European Commission Marie Curie Fellowship, Grant Number PIOF-GA-2010-272996.

UN SDGs

Dieser Output leistet einen Beitrag zu folgendem(n) Ziel(en) für nachhaltige Entwicklung

  1. SDG 3 – Gesundheit und Wohlergehen
    SDG 3 – Gesundheit und Wohlergehen

ÖFOS 2012

  • 509017 Wissenschaftsforschung

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