@article{d1f65e2c3f8c464193f1db6d3f7a66b8,
title = "Symptom-distress and psychosocial resources of patients with advanced colon cancer – a cross-sectional descriptive study",
author = "Sabine K{\"o}ck-H{\'o}di and Martin Matzka and Martin Wallner and Martina Koller and Hanna Mayer",
note = "Funding Information: In the UK, 1 in 4 deaths is a cancer death and most of these people will experience pain at the end of life. In the home, family carers can play an important role in managing pain medication. Our scoping exercise of international literature found evidence of unmet need for support in this role. The aim of this paper is to report the development phase of a complex intervention (MRC 2008)1: an educational intervention called Cancer Carer Medicines Management (CCMM). Methods A staged multi-method approach was used. It included: & a systematic review of interventions for carer management of end of life pain medicines & a review examining the practice and theoretical context of pain medicines management & patient, carer and healthcare professional interviews (n=21) & User Involvement Group consultations (n=29) & observations of usual care & participatory action research workshops (n=2 with 16 nurses) to develop the intervention & a carer and healthcare professional User Consultation review (n=16) Results This multi-method, collaborative approach has been successful in enabling the development of a theoretically informed, evidence-based intervention with robust grounding in carer experience and clinical practice. Conclusions A Phase II study is now in progress to test the feasibility, acceptability & efficacy of CCMM to improve carers{\textquoteright} knowledge, beliefs, skills & self-efficacy for pain medicines management and decrease carer strain. This project is funded by the Dimbleby Marie Curie Cancer Care Research Fund, grant number DCMD-RF-12-05 1. Craig et al. (2008) Developing and evaluating complex interventions. Medical Research Council, London, UK.",
year = "2014",
doi = "10.1007/s00520-014-2222-3",
language = "English",
volume = "22",
pages = "227",
journal = "Supportive Care in Cancer",
issn = "0941-4355",
publisher = "Springer",
number = "Supplement 1",
}
