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Abstract
While there is consensus on the essential importance of public engagement in further developments of biobanking, the related investigation of public views predominantly focused on the concerns expressed by the publics, and the concrete formats of public engagement, without delving into the ways these concerns are constituted. In this article, we summarize recent research on public engagement in order to describe the constitution of respective concerns as “engagement of knowledges.” By shifting the focus of analysis from “publics” to “knowledges,” we draw attention to the interaction dynamic through which citizens embed the new knowledge they receive during expert interactions into the stock of knowledge they already possess. Analyzing our recent investigation of public views on biobanking in the form of citizen-expert panels in the Austrian infrastructure of biobanks (BBMRI.at), we trace this dynamic through citizens’ recurrent concerns that the research and consent practices related to biobanking should be “appropriate.”.
| Original language | English |
|---|---|
| Pages (from-to) | 275-289 |
| Number of pages | 15 |
| Journal | Public Understanding of Science |
| Volume | 28 |
| Issue number | 3 |
| Early online date | 16 Oct 2018 |
| DOIs | |
| Publication status | Published - 1 Apr 2019 |
Funding
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was undertaken as part of BBMRI.at (Biobanking and BioMolecular Resources Research Infrastructure Austria), which received funding from the Austrian Federal Ministry of Education, Science and Research (GZ 10.470/0016-II/3/2013). This work was supported by the Faculty of Social Sciences of the University of Vienna.
Austrian Fields of Science 2012
- 504020 Medical sociology
Keywords
- appropriateness
- biobanks
- data
- informed consent
- public engagement
- trust